If you underwent a genetic test for a heart condition, but the test also revealed that you have a high risk of colon cancer, would you want to know?

A respected scientific society says your doctor should tell you, but the group is receiving criticism for its recommendation that "incidental findings" of genetic tests be shared with patients.

Incidental findings are unexpected results, unrelated to the reason for testing. What to do with these findings has been a controversial issue for adults undergoing genetic testing, as well as children.

In March, the American College of Medical Genetics and Genomics (ACMG) released guidelines saying that when patients receive genetic testing for any medical reason, they should be screened for mutations in an additional 57 genes, including mutations that strongly increase the risk of breast, ovarian and colon cancer.

The ACMG argues that doctors have an obligation to look for and report these mutations because there are ways that people can act to reduce their of developing a medical disorder.

However, some researchers and bioethicists say the new recommendations go too far, and take away patients' rights to refuse medical information they do not wish to know.

Informed consent

A crucial part of genetic testing ethics is ensuring that patients understand what a test might find, and what those findings could mean for future treatment.

Under the new recommendations, a patient who consents to any genetic test is consenting to be screened for mutations in an additional 57 genes. Some bioethicists take issue with this approach, because patients may not wish to know their results for all of these genes.

A positive result for any one of these mutations may increase patients' anxiety, or cause them to live their life differently, said Susan Wolf, a professor of law, medicine and public policy at the University of Minnesota.

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NEW YORK, May 17, 2013 /PRNewswire/ --Sudler & Hennessey, one of the leading global healthcare communication agencies, announces an agreement between Sudler's eHealth Group and NextGxDx, an online genetic testing marketplace for healthcare providers and hospitals.

Emerging trends in healthcare focus on cost, quality, and access to care and information. As personalized medicine continues to expand, and as new genetic tests are introduced daily, integration of these tests into clinical practice is a growing challenge for healthcare providers. The innovative NextGxDx solution consolidates and curates data on genetic tests to help users compare and order tests in a simple way that reduces paperwork and streamlines the ordering process leading to more time with their patient.

This is especially critical now as the NIH announced that Genetests.org, one of the most commonly used gene test databases, is being discontinued on June 4, 2013.

"Working with the Sudler eHealth Group is an excellent opportunity to drive awareness, and Sudler's knowledge of physician engagement is another innovative step for us to take in connecting with healthcare professionals. Collectively, NextGxDx and Sudler eHealth will drive change in the way genetic tests are researched and ordered," said Mark Harris, PhD, CEO of NextGxDx.

According to Cassandra Sinclair, Managing Director eHealth Group, "We're very excited to be working with NextGxDx as they build a new marketplace for genetic testing that will create transparency in the industry. Our strategic expertise, integrated insights, and creative capabilities, along with our decades of healthcare experience, will significantly help NextGxDx meet the next milestone".

The Sudler eHealth Group partners with health information technology (HIT) companies to effectively tap into the healthcare market through strategic communications, education, and training of healthcare professionals. Using its strategic, integrated insights and capabilities, they have moved markets for their pharmaceutical clients and will use this foundation and experience to help HIT companies drive market change at the point of care.

If you would like more information about how Sudler's eHealth Group can help find solutions, visit http://www.sudlerehealth.com or contact any of our eHealth leaders:

Cassandra Sinclair, cassandra.sinclair@sudlerehealth.com

R. Shane Kennedy, shane.kennedy@sudlereheatlh.com

About NextGxDxNextGxDx provides an online genetic testing marketplace that offers healthcare professionals and hospitals the ability to access up-to-date listings of all genetic tests from CLIA-certified laboratories, view pertinent information about each test, order tests online, and manage results electronically within the HIPAA-compliant portal.By providing clinicians with a one-stop-shop to search, compare, and order genetic tests, NextGxDx reduces the time and costs associated with the ordering of genetic tests.For more information, visit http://www.NextGxDx.com.

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